tag:blogger.com,1999:blog-2528292191065365522.post3660053305787985889..comments2022-02-24T20:59:00.123-08:00Comments on Vestobulodynia / Vulvar Vestibulitis - My Story: The BeginningMohttp://www.blogger.com/profile/00148044111026091509noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-2528292191065365522.post-85941674791504191992022-02-24T20:59:00.123-08:002022-02-24T20:59:00.123-08:00Dr Itua cures my HIV, I have been an ARV Consumpti...Dr Itua cures my HIV, I have been an ARV Consumption for 10 years. I have been in pain until I came across Dr Itua on a blog site. I emailed him about my details of my HIV and my location I explained everything to him and he told me that there is nothing to be scared of that he will cure me, he gave me guarantee, He asks me to pay for items fees so when I'm cured I will show gratitude I did and giving testimony of his healing herbs is what I'm going to do for the rest of you out there having HIV and other disease can see the good work of Dr Itua. I received his herbal medicine through EMS Courier service who delivered to my post office within 5 working days. Dr Itua is an honest man and I appreciate him for his good work. My GrandMa called him to appreciate him and the rest of my friends did too, Is a joy to me that I'm free of taking Pills and having that fat belle is a nightmare.you will understand what I'm talking about if you have the same problem I was having then not now though. I'm free and healthy Big Thanks To Dr Itua Herbal Center. I have his calendar too that he recently sent me, He Cures all kind disease Like, Cancer,Weak Erection, Wart Remover,Hpv, Herpes,Alzheimer’s disease,Bechet’s disease,Crohn’s disease,Cushing’s disease, Heart failure, Multiple Sclerosis, Hypertension,Fibromyalgia,Hiv, Hepatitis B, Liver/Kidney Inflammatory, Epilepsy,Blood Cancer, Prostate Cancer, Colo-Rectal Cancer, Brain Cancer, Lung Cancer, Infertility,Parkinson's disease, Lung Cancer, Breast Cancer, Cataracts,Macular degeneration,Cardiovascular disease,Lung disease, Enlarged prostate, Alzheimer's disease, Dementia. Fibroid,Diabetes,Dercum,Copd ,and also Bring back Ex Lover Back. Here his Contact .drituaherbalcenter@gmail.com Or visit his website www.drituaherbalcenter.com<br /><br />Conley Tiffanyhttps://www.blogger.com/profile/12474980613303828384noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-18462914318590464802018-07-24T16:00:56.376-07:002018-07-24T16:00:56.376-07:00I’d like to know what you did. I have suffered fo...I’d like to know what you did. I have suffered for years. HelpAnonymoushttps://www.blogger.com/profile/04589476212962735161noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-33905727151534014112015-10-06T07:33:34.930-07:002015-10-06T07:33:34.930-07:00What therapy did you doWhat therapy did you doAnonymoushttps://www.blogger.com/profile/01061178333972405359noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-25661552003246370072013-03-24T17:18:57.571-07:002013-03-24T17:18:57.571-07:00Are you still having trouble with VVS? Please emai...Are you still having trouble with VVS? Please email me. I have recently been "cured" by going to a physical therapist who knew what she was doing!! I had been to therapy before and it did NOT work because it was the wrong approach. Please email me if you'd like to hear about how I've gotten over this. My case was one of the worst the docs had EVER seen. - Wendyby Wendy Leaumonthttps://www.blogger.com/profile/07539898839275673886noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-67114602548018336792011-07-31T08:01:05.375-07:002011-07-31T08:01:05.375-07:00I was first told I had Vulvodynia in 2005 after co...I was first told I had Vulvodynia in 2005 after complaining of pain and pressure in my vaginal area. I had been seen by so many doctors and then I was sent to a urologist. It turned out that my bladder had fallen and he diagnosed the vulvodynia immediately and began treating me with an antidepressant. I had the surgery to lift my bladder and the vulvar pain subsided. Now here I am in 2011 suffering from vulvodynia once again. I am taking an antidepressant(Wellbutrin) and have gain about 15lbs in 1 month. i am not happy, but it is good to know this is not all in my mind and others are suffering with this as well. I have constant BV infections and that's a pain as well. I would love to have the surgery to end all of this pain, but my doctor says no. Thank you all for sharing your stories. SN: I am African-American/Native American and I've read Vulvodynia is not common for us, so it's really depressing for me. I'm feeling like the odd one out.Junehttps://www.blogger.com/profile/02301817543844815512noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-2798682133961880472011-07-31T07:58:05.629-07:002011-07-31T07:58:05.629-07:00This comment has been removed by the author.Junehttps://www.blogger.com/profile/02301817543844815512noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-59854924866494809012011-07-25T08:35:57.386-07:002011-07-25T08:35:57.386-07:00A few of you have questioned surgery, so I thought...A few of you have questioned surgery, so I thought I would share my experience. I lived with VV for at least 12 years before I was properly diagnosed. I had been through a number of doctors, exams, and tests. I was treated in 1998 for BV during my first pregnancy. From then on, I couldn't seem to get rid of it. I had it about 3 times every 2 months on average. Finally in 2007, I guess I finally saw the right doctor who decided to do the Q-tip test and discovered that I had a severe case of VV and recommended surgery. I figured why not, it can't get worse, right? Well, I had the surgery which wasn't so bad. I woke up asking if they had done it yet. The worst part was the follow ups. I had to have steroid injections into the surgery site every 3 weeks for 3-4 months. That may have been the worst pain I ever experienced in my life...and I have given birth to two beautiful children without an epidural. It has been 4 years since that surgery and I have never experienced a single BV infection or pain in the vulva area...that is until now. I am currently pregnant with my third child and was treated less than 3 weeks ago for my first BV infection in a long time. I too believe that the flagyl vagyl has pissed off my vulva and the pain is worse than I remember. Would I have the surgery again? Probably, being pain free for 4 years has been wonderful. Whatever you decide, I wish you the best!Melinhttps://www.blogger.com/profile/07408191926390231831noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-92036828999943885572011-03-16T13:55:37.891-07:002011-03-16T13:55:37.891-07:00I would also like to know where your quest has tak...I would also like to know where your quest has taken you since starting this blog?..<br />As anyone explored surgery - whether they went through with it or not, specifically for those who don't have wide-spread pain but localized at the bottom/6 o'clock area??Célinehttps://www.blogger.com/profile/11826074108977213334noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-84746106465600547902011-03-16T12:52:31.722-07:002011-03-16T12:52:31.722-07:00I'd love to hear where your "quest" ...I'd love to hear where your "quest" with this has taken you in the years since this post. I myself am dealing with a similar struggle.ToxicTigresshttps://www.blogger.com/profile/04076234350421005393noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-82645878267713137792010-10-24T18:28:00.134-07:002010-10-24T18:28:00.134-07:00Good story, I know exactly how you feel. I discove...Good story, I know exactly how you feel. I discovered I had VV in 2008, I started dating my BF in 2007, everything was great, sex was fun and felt great. But after about a year I started having really bad stinging pain the burned and got really inflamed when I would have sex. So I went to my gyno and she tested me for it by using a Q-tip on my vagina and she asked me if it hurt and I said yes, which I had all the symptoms of it so she said that I had VV. I remember going home and crying my eyes out, never had I imagined this could happen to me. Now I'm trying to cope with it as best as I can, it has def taken a toll on my BF and I. Sex is just not fun, we try different stuff but nothing ever seems to be the same. He has stuck by me and I'm so happy that he is in my life, but I just wish they could find a cure or something that works to heal. I don't think I can go on like this forever.Erinhttps://www.blogger.com/profile/10850841258386734213noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-74266626937565590862010-06-05T13:15:19.422-07:002010-06-05T13:15:19.422-07:00Oh how I wish to know how you're doing! I'...Oh how I wish to know how you're doing! I'm having a discouraging day with my vulvar vestibulitis. I've been doing physiotherapy for it for 2 years now. My gyno has tried convincing me to get surgery for it... I'm getting conflicting feels from my physiotherapist who believes I'll still be back in her office due to scar tissu and stuff if I go with the surgery... I feel malinformed, conflicting surgery success rates. I'm able to walk, exercise, not wear tight pants... I sometimes use a cream... <br />I'm confused as physio gave me muscle exercises and things which have helped as it helps bloodflow, but I'm also understanding that it's caused by reoccuring yeast though I never get that white cheese discharge everyone keeps describing as yeast infections... I know I don't have an STD, they keep testing in case whenever you complain about pain and/or after sex pain. My partner is amazing, we find ways to still be intimate, but I feel anxious it will start to take it's toll. I think about sex, I get in the mood for it... I get discouraged and feel like I'm responsible for whether or not it gets better based on my decisions (though that's partially unlogical and brings more guilt than should be attributable). I just don't believe in having surgery for it if I'm not sure it'll help. <br /><br />How are you? Has anyway talked to you about surgery before?Célinehttps://www.blogger.com/profile/11826074108977213334noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-91906192155285549752010-02-09T15:17:56.733-08:002010-02-09T15:17:56.733-08:00vv i beleive is the worst condition anyone can hav...vv i beleive is the worst condition anyone can have, including myself. get hooked up with a gyno/urologist and you will find the light in the tunnel. There are pt that can help, creams and medicines.mikehttps://www.blogger.com/profile/04582346340771183749noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-47767431916071990872009-08-18T11:04:21.140-07:002009-08-18T11:04:21.140-07:00I remember the night I was convinced that I had VV...I remember the night I was convinced that I had VV - I knew that there was something going on that wasn't a yeast infection and wasn't a UTI - so what the hell was it? I'm a nurse so at work one night I delved into some clinical literature. I knew about vulvodynia, but VV fit the bill more. I got off work and balled - bitterly cried myself to sleep. The first practitioner I saw thought I was being silly and overreacting. She found a bacterium (gardnerella - causes bacterial vaginosis although I had no symptoms of the infection) and gave me some Flagyl vaginal gel (I called it Flagyl Vagyl). So I did that and it seriously pissed off my vulva and did nothing for my symptoms. Probably just killed off an asymptomatic bug - who knows maybe it was causing trouble or is related to the VV. I went back to her and said "look - I finished the Flagyl 5 days ago and I feel worse. I think there is more going on." She blew it off and prescribed me some yeast medication which I never took. So a month or so later I finally get an appt with another practitioner that I had tried to see earlier but always has a long wait. She was so empathetic and supportive I started crying right there on the exam table. And she got out her trusty q-tip, did a thorough exam and came to the same conclusion as me - VV. There was one funny looking area right where my point-tenderness is that she biopsied, and that hurt for almost 2 weeks (and pissed off my vulva!). So now I guess I start the treatment phase and I hope we try the right ones and this resolves quickly - relative to VV, that is.Unknownhttps://www.blogger.com/profile/09924453640101419678noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-33442623901757945832009-07-02T01:06:00.661-07:002009-07-02T01:06:00.661-07:00I am so thrilled that you are sharing, and in turn...I am so thrilled that you are sharing, and in turn helping others, like myself, to realize that sharing may help the healing processJessicahttps://www.blogger.com/profile/16545298499932654599noreply@blogger.comtag:blogger.com,1999:blog-2528292191065365522.post-22641728712290495122008-11-19T21:06:00.000-08:002008-11-19T21:06:00.000-08:00I wanted to thank you for sharing your story. I kn...I wanted to thank you for sharing your story. I know it's not easy. But I think there's no greater relief than being open about it and putting it out there for the world to see. It's not fair that we should continue to hide just because some people are uncomfortable with the vagina.<BR/><BR/>I remember crying uncontrollably the day I found out what vulvar vestibulitis really is. It was one of my darkest days. But I am finally beginning to have some hope. Just wanted you to know that I'm here if you ever want to talk or have any questions.Tamrahttps://www.blogger.com/profile/13788932363826493441noreply@blogger.com